I just got back from my oncologist. The bone mets are getting significantly worse and there is now a 3cm tumor on my liver. Although there are no tumors in my lungs there is “central peribronchial thickening and mild parahilar ground-glass infiltration on the left” whatever the hell that means.
They still don’t know what exactly is causing the coughing, it could be the medical jargon quoted above. There is also some cancer and inflammation on my mediastinum that could be a factor. There is no fluid accumulation. There is no obvious big sack of fluid to drain.
My hormone tests from both my oncologist and my nutritionist revealed the same thing- my estradiol (the bad, tumor-feeding kind of estrogen) is sky high. It is at PRE menopausal levels. All my other hormones (including the good estrogens) are super low. Why the estradiol is so out of whack nobody knows but I have a theory-
I’ve been taking thyroid supplements as part of the Gerson protocol. I recently read that thyroid hormone can convert testosterone to estradiol. My oncologist confirmed that this is correct. I stopped the thyroid 3 days ago so now I am just waiting. My doctor and I agreed that I should probably try an aromatase inhibitor. I got a rx but I am going to wait a month before I take it to see if things don’t straighten out with my recent revelations. The aromatase inhibitor (Femera) would decrease the conversion of other hormones into estrogens.
Here is the GOOD NEWS- my tumor markers only went up a couple of points. How is it possible to grow a 3cm tumor and have new bone lesions with almost no increase in tumor markers? I’ll tell you how- I think things got really bad immediately following the oophorectomy. My tumor markers were probably sky high and things were probably even worse than what shows on the scans. I think they are coming back down and things are shrinking. The surgery and all the drugs that came with it f-ed everything up for a time.
I am STILL going to heal completely and the low markers are proof. That said I am going to need lots of prayers and love and visualizations of my perfect health. Know it in your heart that I will be healed that I AM healed. You guys rock. Don’t worry about me, I am going to beat it. My belief is half the battle.
I’m sending you a big care bear stare! I love you!!
Sheila,
Hey hon…I about cried when i read your posts. I am an oncology nurse at Shands. I cant believe what you are going through-you are so strong and determined! Please know that if there is anything i can do i will be there for you. Even if it is as simple as answering questions for you please let me know. I remember you as is my “playmate” when i was a little girl and now you are facing this. I can’t believe it… My prayers and good thoughts are ALL with you! Ivy 🙂
People who don’t give up are much likely to beat it, so you’ve got the right foundation! I will continue to meditate on your healing, envisioning a bright white light radiating around your organs, filling your vessels and around your whole being.
thanks for the love and the white light. i really do feel calm and peaceful so i know i am on the receiving end of some serious white light care bear stare action. I just know it will all be ok. I love you guys.
<<<>>>
AGH! I SAID, HUGS! between brackets. i dont know why they didnt show. love you
She–I never cease to be amazed by your strength and your determination. Your positive attitude is so inspiring. Right now you are surrounded by the healing white light of love, and this shall never leave you. You are perfect–you are healed–you are showered with grace. And I love you — Mom
She,
Hang in tough as you always do. You are the boss of your world. All prayers and power toward you.
love always tom
You are going to be fine. Think it, believe it, live it. We love you!
Thank you all so much for the love and prayers!! I am feeling great and have even taken up walking. I have more energy lately than i have in a long time. I think this is a good sign.
Ivy it is great to hear from you!! Being an onc nurse is a tough gig. I couldn’t do it. Do you have an idea what is meant by the lingo in my scan, the “central peribronchial thickening and mild parahilar ground-glass infiltration on the left”???
I hope you are doing great.
Walking and sunshine, better indicators of good health than the scan findings. My virtual love and prayers to you.
Sending you love and good vibes from Africa!!! ان شاء الله
All my love to you both ~ case
she -glad to hear your feeling better much love, tom
Thinking of you today and hoping that your energy and spirits are still high. I am so impressed by your strength and positive nature about all of this. We love you so much and are hoping for you to heal She; it has been a long road but keep on fighting!
Hi Sheila,
Thought I’d check in to see how you’re doing. Glad to hear you’re showing some good results. I’ve done hyperbarics myself. They made an amazing difference for me. Hope you have similar amazing results.
My thoughts, prayers and well-wishes are with you.
Thanks Rebecca!
The hyperbaric therapy has given me more energy and seems to have increased my ability to FOCUS! It’s amazing. I go daily m-f. It does eat a chunk out of my schedule but the benefits are worth it. Its good to hear from you. Hope you are doing great!